News from Lansdowne

November 26, 2008 at 9:00 am (Brother John, Family, Places) (, , , , , , , , , , , , , , , , , , , , , , , , , , , , )


By Brother John

Winter At Brother John's

Ah yes, now… now I’m starting to feel a tiny bit of holiday spirit! Lansdowne recently received her first snow of the season! It’s at times like this that I really enjoy having a huge picture window overlooking my front yard. I can stand there for long periods of time, watching the birds feeding, the squirrels playing, rabbits hopping around… it’s a magical winter wonderland! Kathy and I often call this view, “The Nature Channel”. (Perhaps we watch too much TV). Sleepy Cat'sBut our kitties enjoy it even more! (When they can keep their sleepy eyes open that is). To them, our picture window is way better than plain old TV! Pictured to the right is the “Cat Chair”.

Every cat we’ve ever served has loved that chair! I must admit that I too enjoy sitting on it at night to do a little reading. Sarah Jane wraps her body around my neck and purrs and purrs. The warmth of her body and the vibration from her purring is one of the best natural massages to be found!

Dad's Invention

Sister Eydie mentioned that Kathy and I had been in the hospital. Kathy has Muscular Dystrophy and had quite suddenly developed difficulty breathing. It was so sudden, in fact, that we actually became trapped in our own house! We have a machine that assists Kathy’s breathing at night, allowing her to breathe on her own during the day. But suddenly she was actually using that machine for total life support. Fortunately, I provided our home with a powerful generator capable of running the entire house should we lose power from the local grid. So we were fairly safe in our house, and we had some backup to her breathing equipment which made us safer still. As a programmer, I have the ability to work from home, and we found ourselves unable to leave the safety of our home.

It took quite a bit of ingenuity on our part to try to do something about our dilemma, but I eventually worked out a plan with the private Ambulance company (STAT Medical Transport). We managed to get Kathy into the Emergency Department at our “favorite” hospital, The Hospital of the University of Pennsylvania (HUP). Nice hospital!!! We then moved from the Emergency Department into HUP’s Medical Intensive Care Unit (M.I.C.U.), (primarily because Kathy was considered to be on life support at that time).

It was in the M.I.C.U. that we discovered Kathy had about nine pounds of fluid pressing on her lungs which make it impossible for her to breathe on her own without mechanical assistance. The fluid was being caused by a defect in her heart known as Diastolic Dysfunction. We managed to get the extra fluid out of Kathy during our stay in the M.I.C.U., but we also learned another thing.

During the night, each and every night, Kathy’s blood pressure would suddenly drop out from under her. It would become so dangerously low, that it set off alarms on the monitoring equipment attached to her. This also could have been a contributing factor to her extra fluid in that during the night, her kidney’s were not receiving proper blood flow. Limited blood meant limited oxygen. Limited oxygen meant improper functioning kidney’s and even damage to Kathy’s organs.

So we began a complicated “game” of finding the best way to prevent Kathy from building up fluid, combined with the best way to have her blood pressure under proper control during the night. Our insurance company could see that this could possibly take some time, time they didn’t want Kathy to be spending in an expensive M.I.C.U. So they shipped us both out of our favored hospital and into an unknown Long Term Care facility (L.T.A.C.).

At the L.T.A.C., our goals were three:

  • Figure out the exact amount of diuretics Kathy required to assist her in keeping off the extra fluids without also causing damage to her kidneys.
  • Figure out the exact amount of blood pressure medication it would take, to maintain her higher blood pressure during the day, yet wear off in time for sleep so that it wouldn’t drop critically low.
  • With the fluid off, retrain Kathy’s lungs and muscles to permit her to wean herself from daytime assisted mechanical breathing devices.

We nicely accomplished the first two simply because we were almost at that point anyway by the end of our stay at the M.I.C.U. Our hope was that the L.T.A.C. would have intelligent techniques to teach Kathy how to wean herself from what had become total life support. We were sorely disappointed. I won’t go into the details of what Kathy endured at the L.T.A.C. other then to say she wouldn’t be with us today had I not been constantly by her side.

Bottom line was I got her out of there with great haste.

We got Kathy a portable non-invasive ventilator. My dad rigged up an attachment that holds a mouth piece near Kathy’s mouth. When she wants air, she causes her chair to recline (in a forward direction) until the mouth piece enters her mouth. She takes in as much air as she needs. Then she reclines the chair away from the mouth piece and breathes on her own. Using this technique, she is spending less and less time seeking the assisted breaths, and is doing more of the work on her own.

I’m happy to report that she continues to breathe on her own more and more each day. All because of the non-invasive portable vent. And we can finally get out of the house! Yay!

I’m not so happy to report another thing. Our insurance company has so far denied covering the cost of the expensive non-invasive portable vent. They have gone against the prescription and order of her physician. We have initiated what is known as a physician to physician appeal.

And I’m even unhappier to report something that just came to me via a received phone call. Evidently the physician to physician appeal was rejected by the insurance company. We will have to give back the non-invasive ventilator on Friday or Monday. Kathy’s bummed.


Walt's Philly Cheese Steaks

Since I hate ending things on a sour note, let’s just say I ended this one on a fatty one. Yes, I went to Walt’s Philly Style Cheese Steaks (the best in Delaware County!!!) and I treated myself to a heart attack on a plate! Yum! I ate the best mushroom cheese steak I’ve ever had (well… since the last time I ate at Walt’s that is 🙂 ). And they have these delicious crunchy onion Rings that are just to die for! I washed it all down with a giant fountain Coke and man… I was in heaven (or would soon be).

Inside Walt's Steaks

Walking into Walt’s is like stepping back in time. Everything is colorful and quaint and has the feel of days gone by. Much of the art is antique and classic. The service is fast and friendly and the prices are quite reasonable. You won’t go home hungry! As I sat at one of the small square tables, I found myself near several groups of friendly customers who were all having a great time. Even though I was by myself, I found myself smiling often, somehow becoming a part of the shared community. All in all, it was a great way to end out the day (and my low sodium diet).

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Excitement Over My New Book!

November 17, 2008 at 7:48 am (Authors, Books, Bottles, Brother John, Carboy, Family, Mead Making, poetry, Siphon, Uncategorized, Wine Making) (, , , , , , , , , , , , , , , , , , , , , , )


By Eydie Wight

Welcome Back Brother John and Kathy

First I’d like to say, “Welcome home Brother John and Kathy!” I may work in a hospital but it’s the LAST place I’d want to spend 24/7 time for nearly two weeks. Especially, in Kathy’s case, being poked with needles, tied to monitors, and a being a guinea pig to the whims of residents who HOPE this medicine or this test will fix the problem that they HOPE they have figured out. Medicine is not an exact science but it is an exasperating one! And, in Brother John’s case, days of sleeping in a chair, not being provided with a place to shower, having to eat cafeteria food and Kathy’s leftovers, and making sure that doctors realize they have to wash their hands just like inferior people all can make you just want to curl up and have a Twinkie. Brother John will have to expound on their adventures in ICU land.

Announcing My New Book Of Poetry!

On Thursday I officially turned my book of poetry over to the printers! I am obnoxiously excited and beg forgiveness for shameless self promotion but this has been my dream for so long. Number one on the old bucket list! I had been working pretty hard the last several weeks to get everything in the correct form. I’m not very computer literate and the pictures I was trying to place kept jumping all over the screen, growing larger and smaller at whim, knocking my text right off the page, or disappearing entirely. Last Saturday was a cold, drizzly day so I worked steadily on the book, progressing from page 17 to page 65, typing in poems I only had in hard copy, searching for elusive photos I KNEW we had somewhere in the big Rubbermaid vat of photos, picture CDs, and negatives, and writing the “thank-you”page, content page, and cover pages. Then, I hit a whole slew of poems that needed to be typed into the format and I was so tired. I was whining to Sammy and he came up with the idea that they could be copied from a poetry site I belong to. And then he somehow hit the “X” button. Now, despite what I have been told over and over again, I hadn’t saved any of my day’s work. Yup, back to page 17. I stomped around the house cursing, I slammed the refrigerator door and kitchen cupboards, I finally grabbed the keys and ran out into the rain. I drove to the top of the ridge and sat in the car and pounded the steering wheel and cursed some more and wailed and boohooed. Then I drove back home, made a pot of strong coffee, and re-entered everything. By 4:30 AM the darn book was done except for proofreading and a little editing. Poor Sammy made me the biggest, most beautiful breakfast in the morning.

So, Thursday we drove to the printers. I had everything on disk, which I copied, including a copy for the fire safe. I had a hard copy (one in the fire safe too). The meeting went smoothly and well, even though I had to pop a couple of Mylanta and wished for a much stronger deodorant. I had a little trouble actually handing over the disk and hard copy. My fingers just didn’t want to let go. I did ask them to make sure they tucked in my poems before bed, didn’t let them go out and play in the rain, and if it wasn’t too much trouble, maybe sing to them just a little. Yup, they think I’m a crazy lady. So, December 1st my poems will come back to me in perfect binding form with an ISBN and a price tag. I may have to break out the Scotch. I DID break out the Apple Jack after we left the printer.

It may have been the high spirits, it may have been the Apple Jack “spirits”, but on the way home Sammy had to forcibly restrain me from using the pellet gun on the large inflatable turkey someone had decorated their yard with. I have a deep, abiding dislike of inflatable yard decorations. This dislike leaves pet peeves in the dust and borders on inflatable serial killer rage. First the inflatables started popping up at Christmas. Then I saw inflatable spiders, ghosts, and a seven foot tall Frankenstein at Halloween. Now the turkey. I don’t want to make light of anybody’s right to tacky lawn decoration, but they do make my trigger finger itch.

Take A Look At Our Beautiful Young Mead!

Speaking of alcoholic beverages, the mead is bottled! At the moment the pantry is empty of carboys. We bottled a case of small beer sized bottles and a case and a half of fifths. Young as it is, the Minsi Mountain Mead has a mellow, somewhat earthy flavor. Not too dry, not too sweet. Now it should age for at least a year. We’ll see…

Each year I try to knit several little Christmas gifts. This year I was so excited because I found a knitted slipper pattern that had belonged to our Granny. I remember those slippers. Every family member had a pair in whatever colors Granny happened to have yarn scraps enough for. They were great for skating down the hallway. I can’t remember which cousin it was (I’m thinking cousin Tim) who had the bright idea to lemon pledge the hall first and then skate down it wearing the Granny slippers but that worked GREAT! Kids, try this at home. (I mean knitting slippers but the hallway slide part is pretty good too!) The slippers are an easy pattern to make. (You can follow the pattern here: Granny’s Knitted Slippers but come back when you are done!). I made my first pair the other night after 40 years of slipper less knitting. I chose a thick brown wool and then knitted a narrow cashmere trim to line the foot opening. Unfortunately the kittens think my slippered foot is the best play toy ever invented. I may have to knit them their own pair. They keep dragging the slippers all over the house at night. Usually a soggy chewed on slipper finds its way into the bed during our day sleep.

I can’t believe that Thanksgiving is nearly here. I still haven’t finished all the fall projects (like winterizing the shed where the outside cats sleep and sorting through the flower seeds I harvested.) I do have the heater running in the cat shed and the old comforters washed and set out on the shelves in there. Big Fat Sherman refuses to leave the shed in the winter so he has a litter box even though the whole world could be his litter box. I have neurotic cats.

I remember one Thanksgiving when my second husband Greg was alive. He was quite a good hunter and had shot a fine big turkey with the shot gun. I skinned it, cooked it with all the trimmings (mashed potatoes, stuffing, cranberry sauce, sweet potato casserole, corn, pumpkin pie) and made myself a nice lunch to take to work. Greg and Roger had gone to mom and dad’s for Thanksgiving and stopped by afterward to see me at work and brought ANOTHER whole plate of food! I had been working with one of the hospital residents who was from Russia and had never had a “true American Thanksgiving” I had spoken of the food in glowing terms during the shift and decided, since I now had two dinners, to share the one I had brought with him. I heated everything up and eagerly awaited his opinion. Well, it seemed that I hadn’t gotten all the shot out of the turkey and the resident’s first experience of an American Thanksgiving resulted in a broken tooth and a first visit to an American dentist. Also, I had over microwaved the mashed potatoes and he had to chisel his way through them. The stuffing like wise was “bone dry” and as he struggled politely through it I thought I was going to have to give him his first American Heimlich maneuver.

We had a little bit of a snow shower as Sammy was driving us to work last night. Combined with my double header of “How the Grinch Stole Christmas” and “The Wizzard of Oz” that I watched before coming into work, I’d have to say I’m getting into the holiday spirit. There’s nothing like holiday movies, a nice fire in the wood stove and (you guessed it) my pajamas to make me a happy girl. Add a little snow falling outside, put a cup of hot tea on the coffeetable and some Granny slippers knitting in my hands and I’m a very happy girl.

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